CRDC 2024 Fall Symposium

Overview

The Cancer Research Data Commons (CRDC) 2024 Fall Symposium marked its 10th anniversary as an essential part of the NCI research data ecosystem. Two days of presentations and panel discussions provided an overview of accomplishments and a look ahead at exciting new initiatives.

Day 1: October 16, 2024
A collaborative session with the NCI’s Office of Data Sharing (ODS) Symposium kicked off the CRDC Symposium. This included a series of presentations by CRDC team members who traced the NCI data lifecycle and the role of the CRDC as an exemplar commons for NIH data sharing.

Day 2: October 17, 2024
Keynote speaker Amanda Borens, a senior data science executive and a cancer patient, reminded all attendees that most of the data being shared through the CRDC was donated by patients, who likely will see no immediate benefit for themselves. She encouraged all attendees to remember their original commitment to careers in science and continue their research on behalf of patients like her.   

Featured speaker Warren Kibbe, Deputy Director of NCI Data Science & Strategy, noted that a great deal of work has been done to make the CRDC useful to the research community and that NCI must continue considering the user experience and the work of researchers—those who generate new data and those whose work is based on data reuse. 

Representatives of programs with which the CRDC collaborates discussed how the CRDC enables their work by ensuring that data adhere to NIH’s FAIR Principles—Findable, Accessible, Interoperable, and Reusable. Updates on AI data readiness, imaging de-identification, and the Data Enclave for aggregated secure data provided insights into important new initiatives. The Advanced Research Projects Agency for Health (ARPA-H) provided an update on the Biomedical Data Fabric (BDF) Toolbox Program, which seeks to make sharing and accessing data easier, regardless of bioinformatics skill levels. Finally, a panel of partners across NCI offered thoughts on the past decade of progress as well as their future plans hosting NCI-sponsored data commons and repositories.  

Day 1 Presentations

Day 1 Combined Slides (pdf)

Welcome & Introductions
Jaime Guidry Auvil, Office of Data Sharing, NCI CBIIT Office of Data Sharing (ODS), and Tanja Davidsen, NCI CBIIT/CRDC

CRDC: A Decade in the Making to Enhance Data Sharing
Structured Data Management for FAIR sharing: CRDC Data Governance and Submission, Ina Felau, NCI CBIIT and Durga Addepalli, NCI CBIIT
From Data to Insight: A Journey through CRDC Resources, Heather Creasy, NCI CBIIT and Erin Beck, NCI CBIIT
Data Retention and Sunset: Ensuring Data Accessibility and Integrity, Mike Warfe, FNL 

Panel Discussion: Infrastructure to Support Data Sharing: CRDC as an Exemplar
Moderator: Jaime Guidry Auvil, NCI CBIIT
Panelists: Allison Dennis, NCI CBIIT; Erika Kim, NCI CBIIT; Umit Topaloglu, NCI CBIIT

Close Out
Jaime Guidry Auvil, NCI CBIIT

Day 2 Presentations

Slides for individual presentations are linked below. 

Session 1: CRDC History, Current State, & Lessons Learned

Session 2: CRDC Success Stories

Session 3: NCI Programs Leveraging CRDC

Session 4: AI and CRDC

Session 5: Future Spotlight  

Session 6: Panel Discussion with NCI Partners
Moderator: Dinah Singer, NCI OD (Note: No slides)
Partners: Jean C. Zenklusen, NCI CCG, Genomic Data Commons; Erin Siegel & Pothur Srinivas, NCI DCCPS, Population Science Data Commons; Lalitha Shankar, NCI DCTD, CIP, The Cancer Imaging Archive; Meg Mooney, NCI DCTD, CTEP, NCTN Data Archive; Connie Sommers, NCI DCTD, DTP, Integrated Canine Data Commons; Xu Zhang, NCI DCTD, OCCPR, Proteomics Data Commons 

For accessible versions of the documents on this page, contact NCICRDC@mail.nih.gov.